Caregiving Resources

Caregiving Resources

Caregiving Resources

As a caregiver, you’re not alone!  More than 22.9 million other households are currently providing care to an elderly loved one.  And, there are plenty of people out there ready to help you.  If you’re looking for information or a care provider, or simply someplace to sound off about what’s stressing you, you’ve got lots of options.

Here are a few organizations and websites to get you started:

Alliance for Caregiving

Established in 1996, the National Alliance for Caregiving is a nonprofit coalition of national organizations that focus on issues of family caregiving.  The Alliance was created to conduct research, do policy analysis, develop national programs and increase public awareness of family caregiving issues. Their website offers information, resources and events for family caregivers. www.caregiving.org

 

AARP (American Assocaition of Retired People)

AARP is a nonprofit organization that offers educational programs, services and support for adults age 50 and older. The AARP website contains an extensive caregiver section that provides information on caregiver support, long-term care, home care and housing. Publications are available online and can also be mailed free upon request. www.aarp.org/families/caregiving.

American Association of Homes and Services for the Aging (AAHSA)

The American Association of Homes and Services for the Aging represents nonprofit nursing homes, assisted living residences, senior housing and community service organizations for older adults.  It offers free publications on selecting housing and care options and provides lists of accredited care communities, as well as information on contacting individual state associations of AAHSA.www.aahsa.org

Assisted Living Federation of America (ALFA)

The Assisted Living Federation of America is a trade association that represents the assisted living industry.  ALFA provides information and education to consumers, industry partners and researchers.  Its website provides an online directory of homes and services by city and state.  E-mail: info@alfa.org. www.alfa.org

Children of Aging Parents (CAPS)

CAPS is the country’s oldest information resource helping adult children understand the needs and concerns of both the parent and the adult child. Extensive national information resource files and publications on a variety of caregiver issues are available. CAPS is a membership organization with approximately 2,200 members across the United States. Members receive a newsletter and can obtain information from the website. Support groups are available in some areas of the country.  www.caps4caregivers.org

 

Family Caregiver Alliance

Founded in 1977, Family Caregiver Alliance was the first community-based nonprofit organization in the country to address the needs of families and friends providing long-term care at home.  FCA now offers programs at national, state and local levels to support and sustain caregivers.  Its website offers research, publications, statistics, fact sheets, public policy news and information on a variety of long-term care concerns.  It also offers an online support group in a listserv (e-mail) format. E-mail: info@caregiver.org. www.caregiver.org

Family Caregiving 101

This is an educational website for caregivers which is co-sponsored by the National Alliance for Caregiving and the National Family of Caregivers Association with support from Eisai Inc. It provides assistance and information for family caregivers on a variety of issues related to caregiving as well as resources for locating needed services.www.familycaregiving101.org

Health Compass

Health Compass, developed by the American Federation for Aging Research and the Merck Institute of Aging & Health, offers older adults and their caregivers a way to search and evaluate health information on the Web in order to make informed health care decisions. A section on improving communication with medical personnel is also included. www.healthcompass.org

National Adult Day Services Association (NADSA)

NADSA is a 20-year-old organization that serves as the national voice for adult day service providers.  You can search the NADSA website for adult day services in your area.  The site also includes a guide to selecting an adult day center.  E-mail: info@nadsa.org. www.nadsa.org

National Association of Professional Geriatric Care Managers

Geriatric care managers assist families and older adults in coordinating and managing long-term care plans and arrangements.  They can help with long-distance caregiving, crisis intervention, counseling and support and other tasks.  Many are trained in therapy or daily money management. There is a searchable database of care managers available by state. The National Association of Professional Geriatric Care Managers is a non-profit organization of geriatric care managers. www.caremanager.org

National Family Caregivers Association (NFCA)

The National Family Caregivers Association is a non-profit organization dedicated to providing support and assistance to caregivers through information, education, public awareness and advocacy. NFCA offers caregiving tips, caregiver advocacy updates and resources online.  A quarterly newsletter called Take Care! Self-Care for the Family Caregiver, a support network and resource guides are available online for members. Membership is open to individuals as well as corporations and ranges from $20 to $200 annually, and is free for family caregivers. E-mail: info@nfcacares.org. www.nfcacares.org

National Association of Area Agencies on Aging

The National Association of Area Agencies on Aging (n4a) is the umbrella organization for our nation’s 655 area agencies on aging (AAAs) and the representative body in Washington, DC, for the interests of 240 Title VI- Native American aging programs. Through its presence in Washington, n4a advocates on behalf of the local aging

agencies to ensure that needed resources and support services are available to older Americans and their caregivers. www.n4a.org

National Association for Home Care and Hospice (NAHC)

The National Association for Home Care and Hospice is a trade association that represents the interests of home care agencies, hospices and home care aide organizations. Membership in the association is offered at six different levels, from agencies to individuals.  Members receive the latest news on the NAHC Member Network listserv, weekly news in the NAHC Report and a monthly magazine, Caring, as well as other services.  NAHC’s website has a consumer section devoted to choosing a home care provider. www.nahc.org

Strength for Caring

This award-winning website provides a wealth of information for caregivers on topics such as financial planning, legal issues, insurance and daily care.  It includes links to other caregiver websites and the ability to download and print caregiving brochures from a variety of organizations.  Caregivers will also find helpful worksheets and tips including a “Doctor’s Office Visit Checklist” from the National Family Caregivers Association. In addition, the website has a listing of statewide and local caregiving and

health care resources as well as support information for each of the 50 states. www.strengthforcaring.com

Government Made Easy

Official information and services from the U.S. government. Offers helpful links to finding care providers, government benefits, elder care, hospice, respite care locators, as well as information about government benefits, legal and end-of-life issues, long-distance caregiving. http://www.usa.gov/Citizen/Topics/Health/caregivers.shtml#Support_for_Caregivers